August 26, 2014

Reviewing One-Handed Knives Again

I am reviewing one-handed knives again because I have found a rocker knife that actually works.  The rocker knife on the left cuts only soft food and sticks out of my purse.  I am not going to buy a bigger over-the-shoulder purse that would hide this nine-inch long rocker knife.  I have to push my purse to the front where it will not hit my cane.  I do not want an even bigger purse making my stomach look huge (vanity).

I love the Verti-Grip Professional Knife from  The rocker knife above is held horizontally so I create downwards pressure with my index finger.  The Verti-Grip knife has a sharp blade that is held vertically so my whole arm can press down as I rock the blade side-to-side.  So it cuts though steak and pork chops.  The Verti-Grip is only six inches long so it fits completely inside my purse.  It has a protective cover that slides off easily so I put a small zip-lock bag over the cutting edge to protect the inside of my purse.  The Verti-Grip costs $17.95 + S&H, but I think it is worth it.

August 16, 2014

Community Ambulation Falls Thru the Cracks

Walking on a deserted sidewalk did not prepare me for walking in crowded community settings, like maneuvering around carts and people in a grocery store, squeezing past closely placed chairs and tables in a restaurant, and dealing with children in a shopping mall who do not look where they are going.  PTs do not know walking requires divided attention, like anticipating where other people want to go while thinking about your own body, because PTs walk clients in wide empty spaces that provide no cognitive challenges.  Equally unfortunate, OTs who are trained to assess and treat cognitive issues, do not see community ambulation as part of their domain because walking uses the foot rather than the hand.  So community ambulation falls through the cracks.  Stroke survivors are left to figure out how to walk safely in the community.

A recent study addresses the unpredictability of walking in the community.  Inness and associates asked what stroke survivors would do when they were not told when they were about to experience a fall hazard  (1).  Stroke survivors were asked to stand with 1 foot on each of 2 force plates.  At an unexpected time a force plate tipped forward and subjects had to recover their balance by stepping forward onto a third force plate.  Everyone wore a safety harness to prevent a fall.  Classic clinical tests like walking speed and the Berg Balance Test were not correlated with the unexpected stepping test results. The 99 subjects who did poorly on the unexpected stepping test had the same range of Berg Balance scores as the 40 subjects who did well on the unexpected stepping test (Berg scores: 25-55 and 20-56 respectively where 56 is a perfect score).  The Berg Test has some high level test items like standing on one foot and putting a foot on a stool while standing unsupported.  However, on the Berg Test clients get to decide when they want to initiate movement and can concentrate fiercely on their own body.

Bottom Line: Being afraid to walk in crowded environments is a major barrier to participating in valued community activities.  Limiting gait training to walking in the home and going around the block contributes to social isolation and depression. 

1.  Inness E, Mansfield A, Lakhani B, Bayley M, McIlroy W. Impaired reactive stepping among
     patients ready for discharge from inpatient stroke rehabilitation.

August 5, 2014

Hidden Costs of Staying in Your Home

No rain water was coming out of the down spout of my gutter so I paid a handyman $40 to remove the debris.  Here are the three bags of stuff he pulled out of a gutter that collects rain water from one side of my house.  Forty dollars is a lot for someone on a fixed income, but a more expensive way to pay for yard work is to go into an assisted living facility. 

Three assisted living facilities near my home charge $3,000 to $4,000 a month.  These facilities pad their activity programs with Bingo six days a week and have small court yards with nothing growing in them so I am not talking about high-end facilities.  Paying $3,000 or more a month is an expensive way to get a gardener.  To see what assisted living costs in your state click on

July 26, 2014

Things I Take for Granted

It has been 3 months since I visited a life-long friend in New Mexico.  I am still aware of how lucky I am to live at sea level in an area that gets lots of rain.  After suffering at an elevation of 7,200 feet in the dry New Mexico climate (5-10% humidity) I am repeatedly grateful for water.  Here a two examples. It rained lightly off and on during my first visit to Point Pleasant Beach after I got home.  Instead of watching pretty white clouds roll out to sea and feeling a cool ocean breeze on my face, I was thankful for moisture the rain put into the air I was breathing.

The first time I went to church after I got home I marveled at the trees I get to look at through a wall of windows.  I doubt that anyone has wondered if a prolonged drought in New Jersey would kill this species of tree.  These trees give me joy whether they are full of leaves or their bare branches are covered with snow.  Trees require lots of water, which is why you do not see trees in New Mexico.

When a psychologist in the rehab hospital asked me what I enjoyed doing I was surprised to hear myself say I was devastated because I would never see the Atlantic Ocean again.  One good thing about having a stroke is that it put me in touch with things that give me joy.  Water and the things it makes possible, like trees and flowers, consistently make me happy.  This is a primal need I did not know I had.

July 16, 2014

Reviewing the Fitbit Pedometer

A pedometer tracks the number of steps people take each day.  Since walking is my only form of exercise, a pedometer tells me about my physical activity.  I bought a Fitbit pedometer but cannot use it.  It has a soft rubbery holding case I cannot manipulate one-handed.  No matter how hard I tried I could not get the pedometer in the case.  At first I thought I would have a friend do this for me, but the battery has to be charged every week.  This involves taking the pedometer out of the case, inserting one end in a cable until tiny prongs (arrow) make contact, and putting the other end of the cable in a USB port.

The confusing return instructions are example of why this company is not user friendly.  They sent the return authorization number in one e-mail and the return instructions in a 2nd e-mail.  The return address in the 1st e-mail was different from the address in the 2nd e-mail.  I am not the only one who finds the Fitbit on-line-only support difficult.  The Fitbit on-line community has 135 pages of "how do I....?" questions.

The Fitbit One is designed to be clipped onto a pocket which is great for men who always have pants with pockets.  It can also be clipped on the center of a bra which is great for joggers wearing sports bras.  I do not want a lump showing under my clothes.

I have gone back to using my Digi-Walker SW-200.  I use half of a clothespin to hold the clip open until I get the pedometer on the waistband of my pants.  However, Fitbit did inspire me to create an Excel file that graphs my daily totals.  Every night before I go to bed I get visual feedback about how many times this month I have reached or exceeded my target.

July 5, 2014

Electrical Stimulation with NeuroMove

My hemiplegic hand was completely flaccid for three month after my stroke.  I did not get any motion back until I started using an electrical stimulation device called NeuroMove.  All such devices strengthen muscles, but NeuroMove is unique because it has a biofeedback component.
I watched a line on a monitor creep higher and higher as I thought about moving my hand. 
That immediate feedback kept me focused and working hard even when I did not see movement.  When my muscle activity got above the threshold line, I got a few seconds of stimulation and was rewarded with a visible hand motion.  However, NeuroMove would not help me until I made a sincere attempt to recruit the muscles that open my hand.  Equally important, NeuroMove would not repeat the stimulation until I completely relaxed the muscle I just used.  Muscle re-education after a stroke includes learning to both recruit and relax muscles.

I tried other electrical stimulation devices that do not have a biofeedback component.  They stimulated my muscles at pre-set intervals or when I pushed a button.  I could not coordinate my efforts with those devices.  In the beginning it took me 20 seconds to figure out how to recruit a muscle and another 20 seconds to make that muscle relax.  NeuroMove patiently waited for me.  The other machines zapped me whether I was ready or not.  It was like trying to dance with a really bad partner who kept jerking me around the dance floor.  I finally gave up trying and daydreamed while devices without a biofeedback component worked my muscles. 

I never lost awareness of what my hand was doing when other people moved it, but I did not have a clue about where the muscles were that I wanted to control.  Research on neuroplasticity shows stroke survivors can grow new connections in the brain, but that does not mean we can find them. The biofeedback component of NeuroMove helped me find connections I did not know I had.  NeuroMove stimulated my muscles AND helped me retrain my brain.

P.S. Saebo has an electrical stimulation device with a biofeedback component.  The ETS mode (EMG Triggered Stimulation) does what NeuroMove does. The Saebo Myo Trac is a small device that can be attached to a client's belt which makes a client mobile.  However the Myo Trac requires complex programming.  NeuroMove is a large heavy box, BUT has one simple program with a recorded voice to tell you what to do.  I rented the NeuroMove and returned it when I progressed enough that I no longer needed it.

June 26, 2014

The World's Tiniest Hand Splints

Problem #1.  When I drive for 30 or more minutes my paralyzed hand gets tight from the constant vibration.    Solution #1: To keep my hand open I use foam tubing designed to slip over the handle of eating utensils.  It has a 5/8 inch opening that runs down the center of the tube.  The fit is not tight enough to keep my fingers absolutely straight, but the foam traps body heat which relaxes my muscles.  My hand starts out stiff as the photo shows and ends flat on my thigh by the time I arrive at my destination.  The foam also provides traction so my hand does not slip off my thigh. 

Problem #2.  Pushing a heavy shopping cart makes my thumb bend severely.    Solution #2.    I slip a piece of foam over my thumb.  The foam keeps my thumbnail from digging into the side of my index finger.

Problem #3.  I have to grip a peanut butter jar tightly which makes my index finger and thumb bend sharply (see black line). 
A severely bent thumb means I am strengthening a bully who is already too strong!  I eat a peanut butter sandwich every day because Smart Balance peanut butter has omega-3 oil which lowers my high triglycerides (a bad fat in the blood).

Solution #3: I keep my thumb and index finger straight by donning rubber finger cots used to count money.  The finger cots give me traction that keeps my fingers straight as my sound hand uses a knife to dig peanut butter out of the jar.  I keep the finger cots in a shot glass for measuring liquor.  The shot glass sits on the windowsill in my kitchen.

These tiny splints are cheap, always nearby, and improve function during meaningful ADLs.

June 15, 2014

Big Ballet

I love dance so I watched a mini-series called Big Ballet on the Ovation channel.  The show is about large women and men learning to perform the ballet Swan Lake.  My intuition told me watching overweight people struggle would help me with a dilemma in my stroke recovery.  Professional dancers who initially pooh-poohed this venture conceded the audience connected with the cast's performance.  The 1,500 people in the audience clapped enthusiastically. 

Who made this project possible?  Wayne Sleep choreographed the ballet.  He is a 5 foot 2 inch man who refused to leave professional ballet because he was too small.  Monica Loughman is a retired ballerina who trained the dancers.  Many of the cast had previous dance experience.  However, they had to work hard to gain strength, flexibility, and endurance, learn the steps in the ballet, and learn to express the emotions of characters in a classic story of love and betrayal. Watching a brave group of people triumph over fear of failure and rejection was thrilling because everyone has struggled with these emotions.

How does Big Ballet relate to my dilemma?  Occasionally I see people staring at me with a look of horror on their faces. They are imaging something that has nothing to do with me, but it is hard not to take their negative reaction personally.  I have thought of several nasty things to say but never followed through because this would intensify the negative feelings I have at that moment.  What I learned from watching large men and women dance is they can be graceful and feel proud of themselves.  The next time people stare I will try to remember the satisfaction I felt when I learned to push a garbage can to the curb.  If I turn the garbage can backwards so the wheels are in front, I can push it like a rolling walker.  This is not a small thing.  You cannot live alone in your home if garbage piles up.  I am not disabled.

Big Ballet reminded me that I also have prejudices.  I think the head of the Northern Ballet is an elitist  who believes the only thing this project accomplished was to besmirch the good name of ballet.  He was on screen for maybe two minutes so I know very little about him.  Yet every word that came out of his mouth was filtered through this judgment I made about him.  When people stare at me with horror, this ballet director will remind me I prejudge some people.  Picturing him will give me a chance to forgive myself which makes it is easier to forgive others.  This is a selfish strategy.  I do not want the time I have left to be high jacked by others peoples' disgust.

Wayne is right.  Everyone deserves to dance or have a personal connection with some form of art. 
I think art is powerful because it brings feelings to the surface, tells stories about the human condition, and creates community.  Technology has propelled human civilization forward ever since someone discovered how to make fire.  Yet art has stood the test of time because it addresses primal human needs.  

June 8, 2014

My 2nd Pet Peeve

To read about my first pet peeve click here.  My second pet peeve is long-handled reachers. 
Long-handled reachers are a pain because the long handle puts objects far from the hand, which makes objects extra heavy.  The long handle also means you have to pull your arm way back to deposit the object close to you.  When I purchased a new washer I was forced to use some type of reacher because the tub is so deep.  Standing on my tiptoes and leaning over while resting my hips on the edge of the washer does not allow me to reach the clothes far away from me (see white arrows).

I went shopping for a pair of long food tongs with Teflon coated tips designed for outdoor grilling.  The expensive pair was heavy.  The cheap pair made by Oneida is lighter, which makes it easier to pick up heavy damp clothes.  I keep the tongs in my laundry room so I will not be aggravated by searching for them in a kitchen drawer.  To keep the tongs from taking up so much room I lock them in the closed position by pulling on the metal circle with my hemiplegic hand.  You could also trap the tongs on top of the washer with your forearm while your sound hand pulls on the circle.  To open the tongs I push the circle back in.  One more aggravation gone from my life.  Cranky stroke survivors do not make good companions.  

May 26, 2014

My Blue Boat Home

I love to travel.  I have driven through 47 of the 50 states and lived in eight of them (Iowa, Illinois, Mississippi, Alabama, Louisiana, Massachusetts, Pennsylvania, and New Jersey).  Yet a recent trip to Sante Fe, New Mexico showed me a dry climate can suck every drop of water out of my body.  On the first day I saw wrinkles on my face that I had never seen before.  Two days later I developed a dry cough.  Two days and nights of dry coughing produced a thick fluid in my lungs and made my back muscles spasm.  Standing up and walking was misery.  Even though I drank several glasses of water a day I was so dehydrated that a layer of skin came away every time I ran a finger across my lips. 

I associate the pattern of dry cough - wet cough - back spasm with winter when sub-freezing temperatures make the air too cold to hold much water.  I did not know thin desert air (elevation 7,200 feet) that has 5 to 10% humidity can make me wish I were dead.

New Mexico is land of amazing panoramic views.  My photo does not do justice to the colors and grand scale.  To survive this beauty I had to buy a vaporizer to put warm moist air in my bedroom and take medicine for a cough and back pain.

Thank God I live on a planet that has tons of water.  However, now I know I need to check the humidity as well as temperature before I travel.  I took a deep breathe when I got back home and saw the Atlantic Ocean.

Except from a hymn called My Blue Boat Home

I've been sailing all my life now
Never harbor or port have I known
The wide universe is the ocean I travel
And the earth is my blue boat home.