Bathing When I Travel

I am traveling at the end of April.  I have not used this shower stool for 4 years so I practiced using it home before I left.  Rehearsal always gives me confidence. 

Caution.  This stool may not be safe if you need assistance to stand up or sit down or are heavy.

It is not safe for me to stand in the shower.  When I travel I use a folding shower chair.  This adaptive device allows me to visit with family and friends and present at conferences.  I bought the stool at a local medical supply house. Before I bought it I wanted to see if I could open it myself and sit on it to feel how sturdy it is.    It is too big for anything but the widest luggage so a luggage saleswoman suggested I transport it in a nylon garment bag.

When I travel I cannot count on towel racks being close to the shower.  Before I get in the shower I check to see if the toilet is close to the shower.  If it is far away I drag a chair from the bedroom and place it close to the shower.  Then I open a towel and put it on the closed toilet seat or chair.  This gives me a clean place to sit after I get out of the shower.  I also put a folded towel on the closed toilet lid or a chair so I can dry myself.  After I am dressed I take the stool out of the bathtub.  I fold the stool and place it on the towel covered toilet seat and use the ends of the towel to wipe off the water.  homeafterstroke.blogspot.com

Good News about arthritis in my Good Hand

Eighteen years of overuse damaged the cartilage in the finger joints of my sound hand.  This produced bone-on-bone pain and swelling.  Fear about losing the use of my good hand motivated me to follow the joint protection principles I wrote about on February 11th, 18th, and 25th.    

After 2 months the pain and swelling in my good hand receded.  For example, a painful hand no longer wakes me up before my alarm clock goes off.  To see if the brief pain in my middle finger also disappears I decided to stop doing crossword puzzles.  Currently I am reading books I got from the library while I drink my morning coffee.  Thank God I have a book easel.  My post of          April 28, 2020 shows how I read hands-free.   

Now I have to figure what to do with my aching good shoulder.  Moving objects I use regularly to the bottom shelves in my kitchen cabinets has helped.  Now I have to tackle the ache I feel when I drive for 45 minutes.  When I visited Point Pleasant Beach recently, I was concerned about the ache I felt in my shoulder towards the end of the ride. This was a surprise because my good shoulder does not hurt when the steering wheel pulls to the left as I slow down to stop for a light.  However, keeping my car in its lane during long slow curves on the highway takes sustained effort.  My plan is to see if new tires and a front end alignment makes a difference. 

Bottom Line: Pain turned into a guide for what to do about arthritis.  homeafterstroke.blogspot.com

My Pill Map

I take 10 pills a day so I need a system to make sure I take them correctly.  I am highly motivated because my pills can help prevent another stroke.  For example, taking a baby aspirin every day thins my blood.  Once a week I open all my bottles to put my pills in a 7 day pill box.  Two or three times a year I put 2 tiny pills in one day's compartment but no pill in the next day's compartment.  They are so small they can slip out of my hand without my feeling it.  I catch this mistake with my back-up strategy. 

When I dump the pills I need for the day, the first thing I do is put my 3 bedtime pills in a small blue container.  Fortunately, these 3 pills are oblong and different colors.  Then I put my daytime pills on a hot pad that has a floral pattern and stitched seam lines.  I place each daytime pill in the same position to create a V shape.  If there is a gap in the V shape I know I am missing a pill.  

Fortunately I have excellent pill recognition.  For example,  I know the baby aspirin has rounded edges and tiny letters printed on one side (top arrow).  The medicine I take for my thyroid is also a tiny white pill, but it is completely flat and has a line through the center (bottom arrow).  homeafterstroke.blogspot.com

Carts Keep Me and My Stuff Safe

A cart saves me from making numerous turns when I bring home groceries. Food that goes in the refrigerator is scattered in several shopping bags.  I collect cold items on my cart, push the cart to the refrigerator, and stand in front of the open refrigerator - no turning and walking back to collect the next item and then turning to face the refrigerator again.  Turning increases the chance of a fall because it is more difficult than walking in a straight line.

Here I am 3 months after my stroke taking a meal to the table.  When 

I got tired of eating frozen dinners heated in the microwave I started cooking.  Initially I cooked one food, ate it out of the pot, and then cooked the next food.  The day I put three kinds of cooked food on a plate was a triumph.  Now I cook regularly and the cart keeps me from burning my hand while transporting hot food. 

A three-tiered cart allows me to sort my dirty laundry by color while sitting instead of repeatedly leaning over and standing up.  This cart also helps me safely transport dirty clothes to my 1st floor laundry room. 

P.S.  I am sitting on a folding metal chair that is stored behind an open door.  homeafterstroke.blogspot.com 

Freaked Out and Then Aggravated

I took Tylenol for three years because osteoarthritis had created bone-on-bone pain in my neck and low back.  I read on line that Tylenol can damage the liver so I freaked out when my feces turned yellow.  The liver secretes bile which turns feces brown.  My gastroenterologist said my feces would have been gray if my liver was not working at all.  I read the liver can repair itself, but I was not taking any chances.  On February 18th I stopped taking Tylenol.  Two weeks and 5 days later my feces turned brown. 

Now my arthritis pain kicks in every night which makes it difficult to fall asleep.  So I use hot packs that CVS calls Peas.  I put them in my microwave but am very careful to not overheat them.  When I touch them briefly they do not feel hot, but if I keep my hand on them I can feel the heat.  I am very conservative about the time I set the microwave for - 45 seconds for the big Peas and 30 seconds for the Peas I put on my neck.  The heat takes half an hour to be affective which is aggravating.  But it is better than rubbing my body and rocking while I watch TV at night because the dull ache makes me suffer.  homeafterstroke.blogspot.com 

A Painful Lesson About Need versus Want

After driving 51 miles every morning in rush hour traffic, I love relaxing while I sip coffee and do a puzzle from the Simon & Shuster Mega Crossword Puzzle Book.  When I do not know the name of a Greek God or other obscure facts, I look up the answer in the back of the book.  I have the satisfaction of doing a challenging puzzle while also finishing it.  Unfortunately, painful osteoporosis in my sound hand threatens my ability to drive a car one-handed.

Using paratransit to stay in my home would be difficult.  NJ paratransit can require riders to wait 40 minutes to be picked up and sometimes ride for an hour while other riders are delivered to their destinations.  It also has a two bag limit which requires multiple trips to the grocery store.  If I cannot find a way to make writing less painful, I will have to choose between something I love to do and driving which I need to do.  

Two adaptive devices that increase the diameter of a pen to discourage a tight grip did not work.  The hard plastic cylinder on the right has a tiny opening that does not accommodate my pens.  The soft tube on the left requires my painful hand to forcefully push the tube up onto the pen while I hold the pen in my mouth.  More pain is counter productive.  

My current strategy to make writing less painful has four parts.               1. Use double-sided tape to attach sticky Dycem to my pen.                         Increased friction means I do not have to grip as forcefully.              2.  Use a gel pen that allows ink to flow at a variety of angles.  

     Ball point pens are finicky about the angle you hold the pen.

3.  Put 2 or 3 fingers on top of the pen instead of the usual one.                     More fingers = less effort for each individual finger.                            4.  Keep all my fingers as straight as possible.  Bending my fingers               increases the pain. 

homeafterstroke.blogspot.com

Reviewing Adapted Knives

When I eat out I order soft food that can be cut with a fork, like fish and pasta.  At home I have rocker knives that let me press down on the food to hold it still while a rocking motion cuts the food.  The small knife on the left in the photo looks like an assassin's weapon so I use it at home to cut vegetables.  The long knife on the right is the most commonly used one.  The photo below shows that this rocker knife does not fit in my purse.

I use an across-the-body purse because straps slide off my shoulder. When I was able-bodied I had a free hand to keep pushing the strap back up.  I found a small purse called the Terrace Shoulder Pouch at ebag.com.  The long knife sticks up so people can see I am carrying a knife - not good.   

I love Verti-Grip Professional Knife from caregiverproducts.com.
It is held vertically so my whole arm can press down as I rock the blade side-to-side.  The rocker knives shown above are held horizontally so I can only create downwards pressure with my index finger. The Verti-Grip is only six inches long so it fits completely inside my purse.  The protective cover slides off easily so I put the knife in a small zip-lock bag to protect the inside of my purse.  The Verti-Grip costs $17.95 + S&H, but I think it is worth it.  homeafterstroke.blogspot.com

2nd Hardest Challenge to My Independence

Learning to drive a modified car is the hardest task I had to master after my stroke.  The 2nd hardest is dealing with the New Jersey ban on stores providing and selling disposable plastic bags.  Reusable bags sold in stores and on-line are big.  They hold a lot so they are too heavy for me to carry up my front steps.  They also do not nestle together in the rolling cart I use to transport bags from my car to my front door.  Section 1.18 of the law allows customers to use disposable bags so I reuse bags I have saved until they rip.  Going to a long-term facility because I cannot get food in my house is a severe consequence.  Meals-on-Wheels supplies only 2 meals a day Monday to Friday.

Solution # 1.  I carry my plastic bags in a canvas bag from LL Bean.  The small canvas bag was not tall enough to let the plastic bags hang down fully.  The large canvas bag sags.  The medium canvas bag with short handles is just right (see photo below).

Solution # 2.  I pre-bag a few items like a half gallon of milk and packages of meat that tend to leak.  I bring extra bags to shake open.      I place one handle over the metal arch shown in the photo.  Then I drop the item in the open bag.  This allows me to work at my own pace before I get to the check-out line.

Solution # 3.  When thin plastic bags are nested inside each other, the friction between bags makes several bags pull out at once.  Hanging them side-by-side vertically stops them from sticking together.  However, when I strung the handles of the plastic bags over the handles of the canvas bag it created a messy pile (see left handle).  I had trouble finding a handle that paired with its mate. 

So I weigh down one handle of each plastic bag with a big key ring.  I hang these key rings over the side of the canvas bag where they are easy to grab.  This strategy lets me quickly find one handle so I can pull the bag open, fill it, and lift it out of the canvas bag.

Solution # 4.  Bulky items like a box of cereal and a pack of toilet paper are hard to put in a small plastic bag.  I put a cereal box on the belt last so I can put it in the empty canvas bag which stays open because it is stiff.  For a pack of toilet paper, I make a hole in the top with my car key after I take it off the shelf.  I stick my finger in that hole to put the toilet paper on the belt and in my cart.

P.S.  I am grateful to a kind cashier at Shoprite named Michelle.  When no one was behind me in line Michelle waited patiently while I made numerous mistakes during multiple shopping trips.    The ban begins on May 4th.  I am glad I had all of February to find the solutions listed above.  Rehearsal saved me again.  homeafterstroke.blogspot.com

Joint Protection Principles Part 2

Avoid a Prolonged Grasp.  A phone with a head set means my painful sound hand does not have to hold a phone for an hour when I talk to family and friends.  

I have an Accto book holder.  Movable arms (see arrow) accommodate different size books.  A lever in the back adjusts the tilt.  I recently read for half an hour while holding a magazine.  Pain in my hand woke me the next morning before my alarm clock went off.

Lift with the Strongest Joint: I use my elbow to lift heavy objects like

cereal and milk containers.  My painful sound hand acts as a pivot to aim the container opening while my affected arm controls how far I lift the containers. homeafterstroke.blogspot.com

Joint Protection Principles Part 1

I am trying not to freak out because I have osteoarthritis from overusing my sound hand for 18 years.  Xrays confirm I have bone-on-bone contact which causes pain.  I cannot count on another disease killing me before my sound hand becomes useless.  So I am using the pain in my index and middle finger to tell me which joint protection strategies are helpful.  For example, when I put away a stack of clean cereal bowls, it hurts to lift a stack of 3 bowls but not 2.  My hope is that reducing pain means I am putting less stress on my joints which will make my hand useful longer.

Slide Rather Than Lift.  I used to fill up my kettle and then carry it to the stove.  Now I put in water for only 1-2 coffee cups and slide it on a dishrag from the sink to the stove.  No pain.

I use my kitchen cart to roll clean dishes from my dishwasher to the cabinets.  This means I do not have to make multiple trips to carry all these heavy objects to put them away.  I lift dishes from waist height to only the 1st cabinet shelf.  No pain.   

Avoid Repeated Gripping.  I cannot stand to watch the same commercials 4 times every hour for months so I constantly change the TV channels with my remote control.  My remote is not heavy, but my painful thumb and middle finger have to hold it tightly because it wobbles as my painful index finger pushes a button. 
 

Now I place the remote on my palm while my sound hand rests on my couch. When my thumb reaches over to press a button, my palm presses the remote against my thigh which holds it still. No pain.  homeafterstroke.blogspot.com