August 28, 2017

A Great Camera for Stroke Surviors

Giving Power Point presentations to stroke support groups forced me to learn how to use a digital camera.  Using my camera for a year showed me I have a new hobby I can enjoy.       I e-mail photos to my family, put photos on my blog, and can save beautiful memories like this visit to Sayen Gardens.  However, here were five problems I had to solve along the way.
(1) I cannot hold the camera still with one hand so I would get blurry photos with many cameras. Cannon has cameras with Image Stabilization which corrects for movement that occurs when I press on the shutter button. (2)  Instead of buying on-line, I went to a store so I could play with several different cameras.  Going through sub-menus to choose different focus options was difficult with one hand.  My Cannon Power Shot A1100 model has a round dial on top of the camera I can turn to different settings.  I turn the dial so the arrow is pointing to the icon I want and I am done.
(3)  I am one-handed so I had to learn to use 3 fingers of my sound hand to hold the camera while the index finger of my sound hand pushes the shutter button.  (4) My sound left hand created another problem.  Shutter buttons are always on the right so sometimes I get a photo with a finger partially covering the lens (bottom right corner of photo).     I am saved by viewing the photo and reshooting if needed.  (5)  Impaired standing balance forces me to look at my surroundings to stay vertical.  I hold the camera at arm's length and look at the LCD monitor so objects in my peripheral vision can show me if I am vertical.  This is much safer than obscuring my vision by holding the camera to my face to look through the viewfinder.                                                                                                                Bottom-Line: Anti-depressants do not just come in a pill

August 21, 2017

When I Cannot Finish What I Started

If I were still married, asking my husband to fix me breakfast would have been a disaster.  Harley got up at 6 a.m. every day we were married.  His routine was to go to a convenience store like 7-11 to get a cup of coffee and sweet roll and come home to putter in the garage while I got ready for work. Then he drove me to the train station where I bought coffee and a bagel.  On Sunday I slept in and he went to a flea market.  I am a night person who can count the number of times I have seen the sunrise on one hand.  If he made breakfast for me after my stroke, one of us would have had to change a life-long habit.  Repeated frustration can turn into resentment.

If I want to wake up when I prefer, it does not matter if I can get out a box of cereal, a bowl, and a spoon.  My hemiplegic hand has to reach out to grab the handle of the milk container to stop it from moving when my sound hand pulls off the cap.  Even if my husband opened the container the 1st time, prying the cap off one-handed could make the container tip over.

 If I cannot open the milk container I cannot finish what I started

August 13, 2017

Meaningful Activities Make My Brain Ache

My presentation has been accepted for an OT conference.
I have presented at nine OT conferences and am determined to find a better way to carry the laptop I need for my Power Point presentation.  I cannot trust my hemiplegic hand to carry a tote bag.  I bought a child-size backpack which saves weight but creates problems.  I refused to go to a store to don a child's backpack with a cartoon character on it.  When a backpack arrived in the mail I realized the straps are too short.  This makes it difficult to put on and take off.  The straps are also slippery so they frequently slip off my hemiplegic shoulder.  This requires frequent stops because I have to put my cane down to push the strap back up where it belongs.  As the photo shows, this tiny backpack is barely big enough for the laptop and is too small for papers I collect at conferences.

Enter a new backpack - still child size, but the straps are longer and padded.  I rehearsed putting this backpack on and walking around to see if the strap stays on my hemiplegic shoulder.  The straps are great.  It is tall enough for me to put 8.5 by 11 inch papers inside.  My laptop slides easily to the bottom.  Yeh!

Bottom-Line: Participating in meaningful activities after a stroke requires detailed problem solving that makes my brain ache.
I was willing to do the work described above because presenting at conferences validates that what I have learned from having a stroke is valuable.  Unlike parents of young children who will eventually be able to stop packing a mountain of supplies to get out of the house, I will never be able to stop planning before I do a new activity.  Click on the "rehearsal" label below to see other examples of problem solving before participating in community activities.

August 5, 2017

Vindicated - Side Effects of Drugs Are Real

Unlike paralysis, fatigue is unpredictable.  The fatigue stroke survivors may experience means they have to break promises to do activities.  So I was not happy about the constant muscle ache I felt while taking a statin to lower my cholesterol.  Only about 20% of people experience this side effect, but when added to the fatigue associated with a stroke, it can be devastating. I finally got disgusted enough to tell my doctor that if he did not lower the dose of my statin I would stop taking it.  He cut my dose in half and the muscle ache and fatigue receded.

I was not imaging that statins affect muscles (1, 2, 3).  Researchers discovered statins interfere with a muscle's ability to store energy in small cells called mitochondria.  Statins can lower the level of enzymes that mitochondria need to perform their energy-storing function.

Good news: A lower dose of a stain maintained my lower cholesterol score while it increased the energy I need to have a life worth living.

1. Bouitbir J, et al., Opposite effects of statins on mitochondria of cardiac and skeletal muscles.
    Eur Heart J. 2012;33(11):1397-407.
2. Reynolds G. Can statins cut the benefits of exercise? NY Times. 2013;May 22.
3. Schirra T., et al. Stain-induced myopathy is associated with mitochondrial complexx III inhibition.
    Cell Metabolism. 2015;22:399-407.